"How my chronic illness made it hard for me to go to school" - L's story

This article was written by a Kooth worker with lived experience and contains mentions of: chronic illness, school, anxiety

Going to school while living with a chronic illness is tough. It’s not just about the days I had to leave class because I wasn’t feeling well – it was also the days I couldn’t bring myself to go in at all.

There were mornings I’d wake up knowing I physically could go to school, but the thought of stepping into the classroom filled me with fear. I knew I’d be behind on work, that I’d have to explain (again) why I was absent, and that I’d sit in class feeling disconnected from my peers. While my friends stressed about tests and homework, I was dealing with things they didn’t have to think about – things they couldn’t understand. It often made me feel like an outsider.

Every time I missed school, I felt like I was falling further behind. The work piled up, and even when teachers were understanding, I still felt overwhelmed and sometimes guilty. I worried people saw me as unreliable or lazy, when in reality, I was trying so hard just to keep up. The fear of walking into class and realising I had no idea what was going on made me avoid school, and it became a cycle that was hard to break.

But over time, I started to accept that I wasn’t failing – I was just dealing with something most people didn’t have to. I found little ways to make things easier, like talking to teachers about catching up in a way that didn’t overwhelm me and engaging in things that gave me energy, like playing the piano or participating in the school hockey team. I realised I wasn’t alone – there are so many people struggling in ways we don’t always see, and there were lots more people who were happy to try to help me than I thought.

If you are dealing with something similar, here are a few things that helped me:

  • Remind yourself that your feelings are valid. It is completely understandable to feel overwhelmed.
  • Take it one step at a time. If going to school feels like too much, use the structure of the school day to help you. For example, try focusing on just getting dressed, then making it through form time, to the end of first period, enjoying your first break time, then making it through to lunch and finally to the end of the day. Breaking it down into smaller steps can help to make it more manageable (and less overwhelming). If there are times you don’t make a whole day, reflecting on what you were able to achieve can be useful.
  • Communicate with others. I was so scared to ask for help, but when I did, I realised most people wanted to support me – they just didn’t know how until I communicated.
  • Find little ways to stay connected. Even if I missed a lot of school, texting friends or chatting at hockey training helped me feel like I wasn’t completely out of the loop. 
  • Be kind to yourself. You’re doing your best, and you are not alone!  

Would you like a safe space to explore the issues raised in this article? At Kooth.com, you can read more, use an online journal, chat with our community and access confidential and anonymous support – all for free, with no waiting lists.

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